Thank you for popping by my website.

Here you will find a little bit of this and a little bit of that but put the bits together and you get a whole lot of me and what I hope, is a not too serious look, at my life and the things that matter to me.






2 thoughts on “About

  1. Sarah

    Hello Toni

    I’ve just read some of your information.

    We have a lot of similarities in our medical portfolio. I too walked late, around 3. I too have a very quiet speaking voice which a singer once told me was due to me breathing incorrectly. As far as I’m concerned breathing in and out works so that’s what I’ll continue to do.

    I was diagnosed when I was 29, having had twins the previous year. To date, my boys don’t have any muscular problems, they are now 30.

    Unfortunately I go caught out in the walking department. I was taken ill 7 years ago leading to a hospital stay of seven months. Consequently I was too weak to walk. I had developed Guillan Barre syndrome which attacks your nerves.

    Up until this time I could walk with a stick. Now I’m wheelchair dependent, which is a bugger.


    p.s. A friend of mine has an adult daughter called Toni.

    Liked by 1 person

    1. ToniLouisa Post author

      Hello Sarah, thank you for your message. It is always good to hear from other adult females, as there aren’t many of us. However, I am in touch with a few and if you would like me to introduce you, leave me a note at https://www.facebook.com/CentronuclearAndMyotubularMyopathyInformationPoint and I would be happy to do so (or you can read more stories at http://centronuclear.org.uk/theinformationpoint/pages/share-a-story/share-a-story.html).



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